The global ahus registry

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August undefined, 2024

Web3 Dec 2015 · The aHUS Registry, established in April 2012, is an observational, noninterventional, multicenter, global initiative to collect information on patient outcomes … Web24 Sep 2024 · This analysis of the Global aHUS Registry (NCT01522183) assessed demographics and clinical characteristics in eculizumab-treated and not-treated patients …

Pregnancy in Women with Atypical Hemolytic Uremic Syndrome

WebDue to the rarity of the disease, global aHUS disease epidemiology is not well known. 16 When reported, incidence and prevalence estimates are often combined with similar disorders such as shiga toxin-producing e.coli associated hemolytic uremic syndrome (STEC-HUS) or thrombotic thrombocytopenic purpura (TTP), leading to inaccurate … Web15 Nov 2024 · Methods: The Global aHUS Registry collects data on patients with aHUS to develop a greater understanding of the condition and advance disease management. The … ostrich shoppe

MO107CLINICAL CHARACTERISTICS OF A PATIENT …

WebAB - AimsTo describe the baseline characteristics and treatment of Australian patients diagnosed with atypical haemolytic uraemic syndrome (aHUS) reported to the Global … Web3 Dec 2024 · Methods: Of patients enrolled in the Global aHUS Registry (n = 1549), 344 had ≥1 kidney transplant. Of these, 188 had received eculizumab. Eighty-eight patients (47%) … Web3 Dec 2015 · The aHUS Registry, established in April 2012, is an observational, noninterventional, multicenter, global initiative to collect information on patient outcomes … ostrich sign

(PDF) Baseline characteristics of patients with atypical haemolytic ...

FACIT-FATIGUE SCORES IN ADULT PATIENTS AT ENROLLMENT INTO THE GLOBAL …

Web26 Jan 2024 · Materials and methods: In this analysis, patients from the Global aHUS Registry (NCT01522183) were included if they were diagnosed with MHT and were followed ≥90 days after initial aHUS symptom presentation or diagnosis date. Demographics and clinical characteristics were evaluated . Table. ... Web7 Apr 2024 · Patients with a clinical diagnosis of aHUS were included in the observational non-interventional Global aHUS Registry (NCT01522183) [].This registry was initiated in April 2012 to evaluate the clinical outcomes of patients with aHUS irrespective of the treatment modality used [].The registry study was established in accordance with the … ostrich silhouetteWeb10 Dec 2015 · The global aHUS Registry, initiated in April 2012, is an observational, noninterventional, multicenter registry designed to collect demographic characteristics, medical and disease history, treatment effectiveness and safety outcomes data for aHUS patients. The global aHUS Registry will operate for a minimum of 5 years of follow-up. ostrich similar birds

"Web9 Nov 2024 · The registry Alexion Pharmaceuticals sponsors the aHUS registry ( NCT01522183 ), which opened in 2012 and runs through December 2024. It plans to … " - The global ahus registry

The global ahus registry

Web21 Nov 2016 · The Global aHUS Registry (US National Institutes of Health www.ClinicalTrials.gov Identifier NCT01522183) is an observational, non-interventional, multicentre registry of patients with aHUS, and is a product of a partnership between worldwide academia, patients with aHUS and Alexion Pharmaceuticals, Inc. The aims of … WebThis retrospective analysis utilized data from the Global aHUS Registry (NCT01522183), an observational, noninterventional, multicenter registry that retrospectively and …

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WebMethods: The observational Global aHUS Registry ( NCT01522183 ), initiated in April 2012, collects demographics, disease history, treatment, and outcomes data for patients with aHUS, regardless of treatment approach. Web29 May 2024 · Atypical haemolytic uraemic syndrome (aHUS) is a rare disease that manifests as complement-mediated thrombotic microangiopathy (TMA), which can lead …

Web10 Dec 2015 · The global aHUS Registry will operate for a minimum of 5 years of follow-up. Enrollment is open to all patients with a clinical diagnosis of aHUS, with no requirement … Web24 May 2016 · For aHUS there is also a global registry. Sometimes referred to as the Alexion Registry, the aHUS Registry was set up as a clinical trial called officially: “An … The reports for aHUS Alliance Global Action are accessible at the Charity … Get all the latest news from the aHUS world. For more information: Two updates on the Global aHUS Community Advisory Board. There is … GLOBAL AHUS HIGHLIGHTS AND SCIENCE-BASED CONTENT. Twitter. aHUS … We thank those who collaborate on global aHUS research efforts, and extend our … Welcome to the aHUS Alliance Global Action’s Information Centre! Containing a … With our PayPal Giving account fully established we could see at last who the … 2016 aHUS Global Poll – Results aHUS Patient Global Voice In a multi-national …

Web18 May 2024 · INTRODUCTION AND AIMS: The scientific literature is limited in terms of defining fatigue levels observed in patients with atypical hemolytic uremic syndrome (aHUS). This analysis sought to evaluate fatigue in patients with aHUS at time of enrollment into the Global aHUS Registry. METHODS: The observational, noninterventional, multicenter … Web23 Jan 2024 · The Global aHUS Registry was created in April 2012 to collect efficacy and safety data and record information on the progression of disease in aHUS patients. Many …

WebBaseline characteristics of patients with atypical haemolytic uraemic syndrome (aHUS): the Australian cohort in a global aHUS registry — the UWA Profiles and Research Repository Baseline characteristics of patients with atypical haemolytic uraemic syndrome (aHUS): the Australian cohort in a global aHUS registry

WebIn this study, we characterize patients (pts) with triggering/associated events occurring prior/up to aHUS onset from the Global aHUS Registry (NCT01522183). Methods. All pts with triggering/associated events prior/up to aHUS onset and enrolled in the Registry from 2011 to July 2024 were included. Pts with an alternative clinical diagnosis ... rock bed spreadWeb20 May 2024 · Similar findings were established in the Global aHUS registry, in this study 344 received one or more kidney transplant,188 had received eculizumab. In this study, 88 patients (47%) were received eculizumab before and … rock beer walmartWeb10 Dec 2015 · Methods The global aHUS Registry, initiated in April 2012, is an observational, noninterventional, multicenter registry designed to collect demographic characteristics, … rock beer the newWeb13 Jun 2024 · METHODS: The Global aHUS Registry (NCT01522183), initiated in April 2012, collects demographics, disease history, treatment and outcomes data in aHUS. Patients enrolled in the Registry with evaluable pregnancy data from the pharmacovigilance database were included. Here, we report the number, treatment status and outcomes for these … rock beethovenWeb3 Apr 2024 · Background Atypical Hemolytic Uremic Syndrome (aHUS) is an ultra-rare disease. Therefore, studies involving large samples are scarce, making registries powerful tools to evaluate cases. rock behaving plastically rock before we bleedWeb21 Nov 2016 · Here, we describe a collaboration between an international group of patient organisations advocating for patients with atypical haemolytic uraemic syndrome (aHUS), the aHUS Alliance, and an international aHUS patient registry (ClinicalTrials.gov NCT01522183 ). rock beer the new santander